Friends aim to help Isleham's Jay Davison join clinical trial
Friends of a seven-year-old boy who has been battling brain cancer for two years are rallying round to give a boost to a fund to pay for him to take part in a clinical trial after his parents were told the NHS could do no more to provide a cure.
Jay Davison, from Isleham, was diagnosed with medulloblastoma early in 2017 and has since undergone treatment including surgery, radiotherapy and chemotherapy.
For Jay, his parents Keily and Martin and sisters Bryony, 18, and Teagan, 13, it has been an emotional rollercoaster ride with good news and bad news, remission followed by relapse.
Jay was due to have a scan this week which everyone hoped would be a repeat of the one he had six months ago, which was clear
“Because he has been rather poorly for the last six weeks, with virus after virus and very painful joints, they brought the scan forward a couple of weeks, said Keily. “It showed a new growth in the left frontal lobe of his brain and we were told there is no longer a curative option available on the NHS.”
Now, with help and advice from Jay’s NHS consultant, Keily and Martin are looking into what options might be open for Jay to join a clinical trial, which would almost certainly mean travelling to the USA.
“We will keep him on a maintenance dose of chemotherapy, which I can give him at home, to keep him as well as possible for as long as possible,” said Keily. “The longer we can leave it, the further along trials will be. Phase One of a trial can be brutal and we don’t want that for him so we will be giving him the best life we can while we look for the best option for Jay.”
If Jay was to join a trial in the USA the bill could be well over £200,000.
“Even if we got the drugs free, there would still be hospital stays, scans and tests, flights, travel and accommodation to pay for,” said Keily.
Fund-raising to date stands at about £11,000 but the news that the NHS can do no more has already found a response in Isleham.
Jay’s friends at the village Beavers group are planning a programme of events starting with a sponsored walk on March 16, a charity football match in partnership with Newmarket Town FC, a quiz night on April 2 at The Beeches community centre in Isleham, a bingo and raffle on April 30 and a charity auction on May 17.
And Jay hopes to be at Isleham Primary School for a while next Thursday for a special PJ Day when his school friends will be raising money by turning up in their nightwear and there will also be a cake stall.