DCSIMG

Fun day will help to raise the profile of Ruby’s condition

Newmarket Journal March 2014
Anna Cole with her daughter Ruby aged 3 who has Cystic Fibrosis and Ruby's Aunt Dani Whiteman, they are organising a charity fun day at the Waggon and Horses. ANL-140325-161237001

Newmarket Journal March 2014 Anna Cole with her daughter Ruby aged 3 who has Cystic Fibrosis and Ruby's Aunt Dani Whiteman, they are organising a charity fun day at the Waggon and Horses. ANL-140325-161237001

Residents in Newmarket are being called upon to help support a family fun day being run in aid of a toddler who suffers with Cystic Fibrosis.

Anna Cole, from Burwell, has organised a fundraising event for the Cystic Fibrosis Trust, at the Wagon and Horses on Easter Sunday, to help raise awareness of the genetic condition that her three-year old daughter Ruby Cole suffers from.

“For a while we have wanted to do something for the charity and we now feel that Ruby is old enough for us to do something like this,” said Anna.

“We want to raise awareness of the condition as unlike those who have physical disabilities those who have it look normal.

“It is like an invisible disease.”

Affecting 2,500 babies every year Cystic Fibrosis is a condition which produces a thick mucus, affecting the lungs and the digestive system.

Although in the UK one in every 25 people carry the gene, a baby is only born with the condition if both parents have the faulty gene.

“The last three years have been really difficult but the first year though was particularly awful,” said 
Anna.

“Although it is a daily thing with all the medication and the treatment she has to have we are getting used to managing the situation.”

“Ruby certainly doesn’t let it affect her. She is very bubbly and active and just takes it all in her stride.”

While there is still just under a month before the family fun day takes place at the High Street pub, Anna has been overwhelmed by the response of those willing to help out so far in coming forward with prizes for the raffle.

Among the list of items up for grabs at the event, which is to run between 2pm and 4pm, are tickets to an Adnams Newmarket Nights meeting, a kids party voucher worth £170 and a three course meal at the Heath Court Hotel in Newmarket.

“Most of the businesses around here and the people that we have approached for raffle prizes have been willing to help which is amazing,” said Anna.

“We have not set ourselves any target we just want to raise as much as we can.”

 

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